Name: Swathi Nisha Nair
Rare condition : Infantile Pompe
Age : 5
Country : Malaysia
Name of artwork : Love Not Rare
What it means: “Love Not Rare” captures the rare siblings unconditional love between Harrish and Swathi.
Frienden's Friend Story - Swathi
Swathi has Infantile Pompe disease that she inherited from both her parents. Swathi lacks the enzyme called alpha-glucosidase. This enzyme is needed to break down sugars in the body. The accumulation of glycogen in certain organs and tissues disrupt their ability to function. Although there is no cure, there is treatment and on going research to find a better treatment. Currently Swathi gets weekly Myozyme infusions at Hospital Kuala Lumpur. Besides that, Swathi does speech and physical therapy. Along with Pompe, Swathi has Sensory Processing Disorder, Mild autistic traits (pre-diagnose), delayed development, Intermittent esotropia (squint). She goes to a kindergarten and loves to play tomcat, cocomelon and other video games.
Product size and description
A3 - 30cm x 40cm (11.8 x 15.8 in)
The product is digitally printed on a canvas with frame.
Shipping
Please allow us 5-7 working days (Malaysia) for us to process your order, arrange shipment and get it delivered to you. For international shipping inquiries, do contact us directly.
Product care
Avoid direct exposure to sunlight.