Caelen Lam is a charming, cheerful and caring 9 year old. He likes to eat ice cream. His favourite colour is blue. He enjoys playing Pokemon and Minecraft, and watching YouTube.
Evelyn was born with Osteogenesis Impefecta. She loves maths and enjoys painting during her free time. Apart from that, she's also interested in piano, ukulele and violin. She's currently under hospitalisation in preparation for spine surgery.
Check out her journey sharing in her Facebook: Angel Evelyn
Palden is a SMA type 2 patient from Bhutan. Not only is she the first one in the country to be clinically diagnosed but she is also the only warrior to raise awareness in Bhutan at such a tender age. Nothing could ever dull her and today here she is. Here to color her dreams and amaze us yet again!
Hi, I'm Ainaa Farhanah Amali. Diagnosed as Spinal Muscular Atrophy (SMA) type 2 at the tender age of 2 years old never stopped me from being passionate and ambitious about arts. Graduated with a degree in Graphic Design. I love painting as a way to embrace my emotions. I also enjoy spending time exploring other mediums and creating craft as well.
Kaye-Leigh, a 12 year old with Prader-Willi Syndrome. Kaye-Leigh loves cats very much. She spends her time drawing or doodling cats, looking at cat pictures and just doing any activity like puzzles or workbooks related to cats.
Arshaan is 13 years old and loves anime. He loves art, coding, and reading. Arshaan has Jansen's metaphyseal chondrodysplasia, an ultra rare disease that prevents him from regulating calcium in his body. When he is not drawing or creating art, he enjoys time playing video games with his little brother, Jahan.
Swathi has Infantile Pompe disease that she inherited from both her parents. Although there is no cure, there is treatment and on going research to find a better treatment.
Currently Swathi gets weekly Myozyme infusions at Hospital Kuala Lumpur. Besides that, Swathi does speech and physical therapy. Along with Pompe, Swathi has Sensory Processing Disorder, Mild autistic traits (pre-diagnose), delayed development, Intermittent esotropia (squint).
She goes to a kindergarten and loves to play tomcat, cocomelon and other video games.
Xiu Yi or a.k.a Mei Mei was diagnosed with Prader-Willi Syndrome when she was born. She loves going to school and enjoys dancing. Mei Mei can't talk except for a few words, she expresses her love and happiness through her smile.
Hello, my name is Jonah. I'm born with a rare form of disease called Hajdu Cheney Syndrome.
I love being in the kitchen. I am learning to read and write but I can't play with kids my age freely or run around due to my physical condition and fragile bones.
Because of my physical condition, I will definitely face issues in looking for work, in the future. My dream is to be a baker and to have my very own bakery. Mommy created this little bakery kitchen for me with hope that I will not give up chasing my dream and passion that this is something I can keep doing when I'm on my own one day.
www.jonahbakes.com
